Tuesday 14 August 2012

Child With Autism Insulted By Customer!

Come across this posting in FB, and I wish that Malaysian Public will always come to the rescue of the family if someone has been an asshole: -


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Sunday 12 December 2010

My feeling after watching Ocean Heaven (海洋天堂)

Kind of Sad, Scare, Helpless and Hopeless. Any good backup plan before I die? I cannot live forever ...


http://en.wikipedia.org/wiki/Ocean_Heaven

Miracle please..

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Sunday 3 October 2010

Amazing Umar


Twelve year old Umar, a Malaysian autistic child, amazes at the Kidzcare concert at Dewan Filharmonik Petronas with the song " I dreamed a dream"



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Sunday 7 March 2010

Parents Often Miss Subtle Autism Signs

Parents Often Miss Subtle Autism Signs

The symptoms of autism tend to emerge in children after six months of age, with a loss of social and communications skills that is more common and more subtle than previously thought, according to a new study that questions previous assumptions about the progression of the condition.  



At six months, children with autism spectrum disorder demonstrated behavior similar to other children, gazing at faces, sharing smiles, and vocalizing with similar frequency, researchers reported online in the Journal of the American Academy of Child and Adolescent Psychiatry. 

However, autistic children displayed fewer of these behaviors as as they got older, and from six months to 18 months the loss of social communication and skills typically became clear. 

To read more click here...
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Friday 26 February 2010

How to handle a special child

I was touched by this presentation about Randy..


http://www.lostcausekidmovie.com/
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Sunday 5 July 2009

Stroke and The Tongue

Stroke Identification

During a BBQ, a friend stumbled and took a little fall - she assured everyone that she was fine (they offered to call paramedics). She said she had just tripped over a brick because of her new shoes.

They got her cleaned up and got her a new plate of food. While she appeared a bit shaken up, Ingrid went about enjoying herself the rest of the evening

Ingrid's husband called later telling everyone that his wife had been taken to the hospital - (at 6:00 pm Ingrid passed away.) She had suffered a stroke at the BBQ. Had they known how to identify the signs of a stroke, perhaps Ingrid would be with us today. Some don't die. They end up in a helpless, hopeless condition instead.

It only takes a minute to read this: -

A neurologist says that if he can get to a stroke victim within 3 hours he can totally reverse the effects of a stroke ... totally. He said the trick was getting a stroke recognized, diagnosed, and then getting the patient medically cared for within 3 hours, which is tough.




Recognizing A Stroke

Thank God for the sense to remember the '3' steps, STR. Read and Learn!

Sometimes symptoms of a stroke are difficult to identify. Unfortunately, the lack of awareness spells disaster. The stroke victim may suffer severe brain damage when people nearby fail to recognize the symptoms of a stroke.

Now doctors say a bystander can recognize a stroke by asking three simple questions:

S *Ask the individual to SMILE.
T *Ask the person to TALK and SPEAK A SIMPLE SENTENCE (Coherently) (i.e. It is sunny out today.)
R *Ask him or her to RAISE BOTH ARMS.

If he or she has trouble with ANY ONE of these tasks, call emergency number immediately and describe the symptoms to the dispatcher.


New Sign of a Stroke: Stick out Your Tongue

NOTE: Another 'sign' of a stroke is this: Ask the person to 'stick' out his tongue. If the tongue is 'crooked', if it goes to one side or the other, that is also an indication of a stroke.

A cardiologist says if everyone who gets this e-mail sends it to 10 people; you can bet that at least one life will be saved.



Saturday 27 June 2009

Online Resources and Helps

If your child may have autism, and you wait for your doctor to diagnose it, you are crippling your child's future. Early detection by YOU dramatically improves the effects of treatment to reduce the symptoms of autism. YOU can start treatments and training to reduce future effects of autism rather than wait until your child is three years old for your doctor to make the diagnosis. So parents and caregiver, get this Autism Symptoms and Treatments
 

How much would you expect to pay for expert advice and information that quite literally could change yours and your child's life? It provides you with the knowledge you need to ensure he or she receives the best treatment available?

Certainly, "specialists" wouldn't think twice about charging you hundreds of dollars for this information, but you won't have to pay anywhere near that much for The Essential Guide to Autism.

The price of the Essential Guide To Autism has been kept deliberately low so that as many people as possible can benefit from the wealth of autism information it contains.



In the next resources or book, you are going to discover: -
Simple and proven techniques to stop your child's difficult behaviors so you can attend social functions without fear and worry.
The quick and easy steps that you can follow to understanding your child's behaviors without having to pay huge $$$$ for a private therapist.
How you can improve your child's communication skills and give yourself a closer relationship with them.
Which autism treatments really work and which are a waste of your precious time, energy and money..........and leave you feeling ripped off and angry inside.
The real truth about diagnosis, diets, health problems and the different types of autism (that 
will save you hours of frustrating and boring research on the internet).


Here are the facts:

* 1 in 150 children have autism symptoms.
* Children with autism will not get better without effective treatment.
* Effective autism treatments are available.
* Your ASD child can get better once you identify and treat their specific problems.

Conquer Autism is a comprehensive hands-on guide to help a child with autism get better. It is written for parents and caretakers of children with autism and covers all aspects of diagnosis, treatment, and communication with autistic children at home and at school.

This 213 page eBook is available in PDF file format for immediate download.







Friday 26 June 2009

Self Help Hypnosis

Self hypnosis is a very powerful way to manage a wide range of issues of problems that we have. Next Click on the pictures below that best describe your concern, and self hypnosis your issues and problems away.













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Wednesday 24 June 2009

Best Treatment Options for Autism

If you're really worried a loved one with Autism might never truly enjoy life to the full. Finally, You Too Can Join Others Who Have Discovered Simple Methods To Effectively Spot The 31 Signs of Autism;  Learnt Critical Information To Maximize the Potential of Someone With Autism

Continue reading to learn how others like you overcame confusion; uncertainty; discovered the "best" treatment options for their loved one with autism. Click Here!

Tuesday 23 June 2009

Australian couple starved daughter, 7, to death

SYDNEY (AFP) — An Australian couple have been convicted of starving their autistic seven-year-old daughter to death after a harrowing trial which heard the girl weighed just nine kilograms (20 pounds) when she died.


Prosecutors said the emaciated girl had resembled a Holocaust victim, while ambulance workers called to the scene said she looked “mummified” shortly after her November 2007 death in the Hunter Valley, north of Sydney.

A jury deliberated for almost a week before finding the girl’s mother, 35, guilty of murder and convicting her 47-year-old father of manslaughter, national news agency AAP reported.

The pair, who cannot be named for legal reasons, had pleaded not guilty to murder.

Several medical experts testified the girl suffered the most severe case of malnutrition they had seen, saying her head looked like a skull wrapped in skin and that her muscles were wasted due to long-term neglect.

The mother’s barrister Dennis Stewart described his client as a prescription drug addict unable to cope with day-to-day matters who had believed she could nurse her daughter back to health.

He said he her actions were “foolish, irresponsible, negligent to the point of attracting criminal results” but did not warrant a murder conviction — an argument the jury rejected.

The father’s defence was that his wife was the only person who could feed and care for their daughter because of her autism, and the mother had never indicated there was a problem with the girl.

The mother will be sentenced Wednesday and the father in six weeks. Justice Robert Allan Hulme offered the jurors counselling, AAP said.

Please share this news with friends, family and also with your contact list on Twitter, Facebook and MySpace.
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Unlocking secrets of autism treatment

It's a disease with unknown causes, no known cure and treatments as varied as the minds forced to live with it.

Success for a person with autism can be measured by something as simple as being able to sit quietly through dinner at a restaurant - something it may take years for that person to learn.

And if one form of therapy is more successful than another in unlocking minds and personalities trapped by the ailment, executive director Frederica Blausten and her Association for Metroarea Autistic Children (AMAC) staff will probably be a part of finding it.

Autism is a developmental disorder "characterized by impaired social interaction, problems with verbal and nonverbal communication, and unusual, repetitive or severely limited activities and interests," says the National Institute of Neurological Disorders and Strokes Web site.

"There are all sorts of public policy definitions of autism," Blausten said. "It is a neurodevelopmental disorder that primarily affects social and emotional development, socialization skills, social interactions and language.

"We do not know what causes autism, and there is no biological test where you can take blood and say, 'Aha! You're autistic.' Diagnoses are made by observable functions and behaviors, which makes it [diagnosis] so difficult."

AMAC's W. 17th St. facility is all about observing the several hundred students - ranging in age from pre-schoolers to people in their 40s - and designing treatments for each.

Classrooms and hallways are equipped with video cameras that record all students and teachers as they go about the school day.

Observations from those videos are teamed with meticulous classroom notes and daily student evaluation reports done by teachers to design individual student treatment therapies, Blausten said.

Dr. Nyla Lamm, AMAC's director of research and applied behavior analysis training, then crunches the report numbers to see not only what therapies work, but which teachers are more effective.

"If we have something that is really working, we want to get it out there so more people can use it," Lamm said.

Said Blausten: "We have a saying: You do not get a raise for getting older; you get a raise for getting better.'"

Nothing proves what works like results: last week, several AMAC students took the state Regents exams in several subjects.

That success could figure in why Blausten is now reviewing 120 applications for 40 student openings.

"Our goal is to move people out when they are ready," she said.

Though stung, like most nonprofit groups, by a recession-fueled drop in donations, AMAC has continued several initiatives.

In September, AMAC will hold opening ceremonies for a two-building, full-time facility for adult men with autism on 129th St. in Harlem.

In August, it will again operate Camp AMAC - billed as the the only camp for autistic children on the East Coast - at Alpine, N.J.

The two-week camp "gives students and their families a much-needed break," Blausten said. "We get camp applications from around the country."

To learn more about AMAC or to make a donation, call (212) 645-5005, or see the Web site www.amac.org. crichardson@nydailynews.com

Friday 19 June 2009

Autism Center must be saved

Quinn: Autism center must be saved By Adam Testa, The Southern
Thursday, June 18, 2009 10:55 PM CDT

CARBONDALE - Gov. Pat Quinn made his message clear within two minutes of walking into Southern Illinois University Carbondale's Wham Education Building, home of the Center for Autism Spectrum Disorders.

"We've got to save the program here," he said, shaking hands with center Director Tony Cuvo before a news conference. "We've got work to do."

The autism center was one of many stops Quinn has made recently on a statewide tour of social service entities, a tour many of his opponents have called fear-mongering.

Quinn, who is promoting citizen engagement in encouraging legislators to approve a state budget including a two-year, 50-percent income tax hike, decried those allegations, calling the tour "truth telling."

A state budget remains in gridlock in Springfield with a new fiscal year slated to begin July 1. A "doomsday" budget projects cuts of up to 50 percent to many of the state's social services, which Quinn said should not even be an option on the table.

"We have to have programs that help families stick together, stay together and move ahead," he said to a crowd of more than 100.

Cuvo addressed the crowd about the importance of the autism center and the role it plays in Southern Illinois. Through state funding, the center has assessed more than 460 children from the region, provided therapy to more than 120 of them, helped many autistic children transition into regular classrooms and affected the lives of families from about 115 communities across more than 30 counties, he said.

"They will have to go out of the region, including out of the state, to get diagnosed," Cuvo said of the effect the closure of the center, which would happen under the state's worst-case scenario budget. "It will be a very sad day for children with autism and their families throughout Illinois."

Quinn said he would not approve a budget that does not include an income tax increase and that cuts funding for essential social services. He also bashed a rumored possibility of operating the state budget on a month-by-month basis for six months, referring to it as the "juvenile way to go" and comparing it to the actions of his predecessor, ousted Gov. Rod Blagojevich.

"We are going to fight until our last day, until our last breath to save this program," Quinn said. "I don't want to cut the heart and soul of Illinois."

adam.testa@thesouthern.com, 618-351-5031

We are working hard to save ours in KL too..


Tuesday 16 June 2009

Parents of two autistic sons vaccinated one but not the other

Punch drunk as I am, required to read every alert regarding vaccine injury, I was struck by the facts issued on WKRG.com News 5. Reported by Kesshia Peyton, who interviewed Dr. Paul Offit, there is a surge of parents who are very angry at the diversion that anti-vaccine activists have created.

Tina Brown, mother of 2 boys with autism, decided not to vaccinate son Dylan because his brother Dalton had  been inoculated and was subsequently diagnosed with autism. Sadly, even in the absence of vaccines Dylan demonstrated symptoms of autism at 4 months of age.  (video interview here).

Mrs. Brown believes that there is great need for research in environmental, genetic, and DNA reasons for the onset of autism. She is part of a growing number of parents who want answers, other than the constant mention of vaccine injury.

Dr. Offit, author of Autism False Prophets, believes that "those who oppose vaccines have taken the autism story hostage". He agrees that there is profiteering and quackery in this arena. It is the fundamental action of false prophets, to entice and recruit vulnerable families. Frankly, I agree, but "snake oil" medicine is not relegated to autism. Parents need to be vigilant and at the same time practical about the information that is presented. Sometimes it is very painful to tease our emotions from clarity of thought. We so desperately need a reason, a cure, a miracle, our focus is skewed, and ultimately our children are victims again.
I don't have the answers, but I sure want them. Now.
Author: Robin Hausman Morris
Robin Hausman Morris is a National Examiner. You can see Robin's articles on Robin's Home Page.


Autism and Toxins

Dr Harvey Karp has just written an excellent blog beginning to discuss the role environmental toxins play in causing autism. I agree that the huge rise in autism is real, and not just related to better diagnosis or reclassification of mental illness. Autism is most likely caused by a genetic predisposition and an environmental "trigger."
 
Studies showing that vaccines and their many constituents do not contribute to this problem are flawed, filled with specious reasoning and, for the most part funded by the pharmaceutical industry. Even articles in reputable medical journals are often written by doctors with an economic interest in continuing the vaccination program's status quo. This does not invalidate all of these studies but it certainly makes them suspect and a poor foundation for an argument excluding vaccines from the list of environmental influences on the increase in autism in America and elsewhere.

The facile dismissal of those of us calling for safer vaccinations and scrutiny of the current vaccine schedule is not scientifically based and polarizes the discussion. Perhaps most importantly, this dismissal is insulting to the thousands of parents and families who aver that their children have been harmed by vaccines. There are extremists choosing to ignore the facts in all vaccine/autism camps. I am not one of them.

Asking that cars be manufactured with more attention to safety and that driving is best when done safely does not make one "anti-car" or anti-driving. Asking for safer vaccinations and more judicious use of those we have does not make me or anyone else "anti-vaccine."

The studies Dr. Karp cites show pretty much the opposite of what he's claiming they do. The opposite. The Danish Study's data are misused by all and interpreted to suit one's needs. The Japanese study also shows a connection between the MMR split into three components and autism. Mainstream medical journals rarely will publish editorial comment impugning the quality or integrity of vaccines because they are dependent upon the good graces of the pharmaceutical industry for their publishing dollars. Seeking out reputable commentators is difficult because the extremists on both sides of this debate exaggerate their claims and speak louder and more unpleasantly as if this helps to make their points.

In April of 2009, the "Journal of the American Medical Association" spoke to the conflict of interest and possible corruption as the journals, the AMA, the AAP and other medical associations rely on money from the manufacturers of vaccines and other drugs.

I have been in practice thirty years and watched thousands of children get shots, not get shots, develop autism or remain developmentally "neurotypical." I have no proof that vaccines cause autism and would be very excited to have my large group of extremely healthy mostly unvaccinated children studied someday. It would be disingenuous to imply that non-vaccination might not lead to an increased incidence in vaccine-preventable illness. It would be equally disingenuous to state that this possibility poses a great threat to America's children. The risks of vaccinating the way we do now exceeds the benefits of this vaccine program. "Scientists" who suggest that experienced doctors ignore their eyes and ears are wrong. Detractors who say that we should ignore parents who are certain that vaccines caused their children's autism are wrong and often quite mean-spirited.

Dr. Karp, if you are going to talk and blog about kitchen cleaners, furniture polish, pesticides and other toxins, how can you possibly ignore the 30-40 injections of potentially risky material we give children in their first 24 months of life? There is absolutely no proof that these shots are as safe the makers say they are and certainly no proof that new combinations of vaccines and hastily created shots are safe enough for our children.

Certain childhood illnesses are far less common than before we had vaccines to decrease their numbers. When numbers drop so low for certain illnesses, we have to cast a strong critical eye on the possible side effects of a vaccine. This loving, reasonable principle can initially be applied by an individual parent to an individual child and family. We certainly have to add public health into this complicated calculus of risk versus reward. It remains very possible that changing the way we manufacture vaccines and being more selective in our use of them may have huge public health benefits. It would be unscientific and immoral to ignore these more difficult possibilities in favor of the easier answers in Dr. Karp's post. We can save more children if just think harder.

Giving children the chicken pox vaccine may lead to huge shingles problems in adults.

Autism is triggered by many environmental, infectious and other causes. Vaccines are one of these triggers. Believe the parents!

Jay Gordon, MD, FAAP

Monday 15 June 2009

Fear is the force behind autism

Temple Grandin, renowned author and representative of the autism world shares her views on the mystery of autism spectrum disorder. I first met Temple Grandin nearly 20 years ago, as she was invited to speak about the very disorder that controlled her own life. A few years later I met her mother, whose tenacity and devotion to Temple paved the way to living with autism.

Temple's clarifications remain to this day to be the most concrete and reliable source for me. Autism is a maze, and perhaps only someone who can articulate what it truly feels like can make some sense of it. Reported by Argusleader.com, Ms. Grandin recently spoke at Augustana College.She reiterated her message at Augustana: "Fear is the main emotion in autism".

I have always believed that autism is about control. Being the master of their own world, including everything from eye contact to tactile defensiveness is motivated by governing the fears of individuals with autism. It's about self protection, in my opinion.

The report continued:" The autistic mind is into detail. Build an area of strength," she said. But mundane matters can be overwhelming. She told her listeners that if someone released several cobras inside the auditorium, they'd all be constantly looking around for snakes as she spoke. Running water, loud noises and scratchy clothing all can set off similar alarm bells for the autistic."

I wrote Can you teach fear to your child with autism in order to address the real dangers in not recognizing peril. However re-teaching fear is quite another story. How do you eradicate a mental image of fear? How do you you dilute the power of the intangible? The report specified that " Grandin thinks the autistic can compensate, in part. "Social skills can be taught, but social-emotion relatedness may remain absent or weak,". Clearly, building trust for those on the spectrum is an imperative. It is the path to conquering fear.
Author: Robin Hausman Morris
Robin Hausman Morris is a National Examiner. You can see Robin's articles on Robin's Home Page.

Saturday 13 June 2009

Haze struck again in Malaysia

Air Quality Kills
Until now, most of today's leading air cleaners only recirculate the same, contaminated air - leaving your home and family unprotected against invisible, airborne intruders that can cause or heighten the severity of existing respiratory conditions.

The ATMOSPHERE Air Purifier gives you the power to transform your environment. Innovative purification technology combined with superb performance and purification power effectively eliminate 99.99% of the impurities that are drawn into the system up to 0.009 microns. The ATMOSPHERE Air Purifier has also been certified by AHAM (Association of Home Appliance Manufacturers) for meeting the air cleaner performance standard.

Quiet, efficient and convenient, the ATMOSPHERE Air Purifier protects your loved ones by cleaning the air they breathe. It's a breath of fresh air in air purification technology.

Want to find out more about this Atmosphere Air Purifier,
Email or Call Shiok Guy +60122082818

Air quality declines in Klang Valley

PETALING JAYA: Air quality in parts of the country have deteriorated due to local peat fires in Selangor and forest fires in Indonesia bringing over haze to Malaysia.

At 5pm Friday, Port Klang and Cheras recorded unhealthy API readings of 136 and 109 respectively. Shah Alam’s API reading went up to 120 from the 95 recorded at 11am.

Overall, 21 areas recorded good air quality while 26 areas recorded moderate air quality readings.

Other areas close to heading into the unhealthy quality range of between 101 and 200 include Kajang (100), Batu Muda (99), Petaling Jaya (93) and Putrajaya (92).

Compared to Thursday, yesterday’s API readings showed a general decline in air quality in the Klang Valley. Read More at The Star here


Friday 12 June 2009

Tips on caring for a child with autism

Tips on caring for a child with autism

As doctors, families and schools learn more about autism, people living with autism have overcome obstacles to lead healthful, meaningful and productive lives.

However, a recent Easter Seals study found that parents of children with autism face a number of unique challenges. Nearly 80 percent are extremely or very concerned about their child's independence as an adult, compared to 32 percent of parents of typically developing children.

These parents also report they're "financially drowning," with 74 percent fearing their child will not have enough financial support when they die. Only 18 percent of parents with typically developing children share this same fear.

Fortunately, there are ways for parents of children with autism to ease their concerns. Easter Seals, the nation's largest nonprofit provider of autism services, offers these tips:

•Find programs. A basic rule for treating autism is the earlier the intervention, the better. There are a range of options for people of all ages. Generally, the best programs build on the strengths of the individual with autism and provide a structured environment and support.

•Plan ahead. Ease fears about the child's financial future by taking steps today. It's never too early to speak with a financial advisor about special-needs trusts and other options that could help care for a son or daughter later in life.

•Take personal time. Families can find respite by having a professional or a trained volunteer come to their home to provide support or by enrolling their child in a day or weekend program. This allows the parents to enjoy recreational, social or other important activities with siblings or with each other.

•Connect with families. Parents can attend an Autism Community Forum hosted by Easter Seals. The event brings families, community service groups and support services together to learn from one another as they look at the care options available for people with autism in the area.

The forums can be a good way to develop better support networks and ultimately improve care for people who have autism.

This article provided by North American Precis Syndicate Inc.

Tuesday 9 June 2009

Hand in hand with autistic kids

GAMAL Zahar, 18, taught himself to play the banjo. He hugs the banjo to his chest as he strums a tune. Although seemingly focused on his banjo, Gamal is also closely following the conversation in the room.

With him are Andrew Chew, 24, and Tan Seng Kit, 20. The lads sit patiently on their stools – being interviewed by the press is something they have to get used to as “stars”.

All three are autistic and will be performing at the Hand in Hand with the Stars concert, in which Chew and Tan will be drumming.

A group of about 10 people with autism, aged 12 and above, will be drumming at the concert. The lights in the theatre will be switched off and all the audience will see are the white gloves worn by the performers and the fluorescent drumsticks.

Practice makes perfect: (From left) Tan, Chew and Gamal practising for the concert.

The concert, to raise awareness and funds for Parents’ Resource for Autism (PR4A), will be held on July 3 and 4 from 8pm to 9.30pm, and on July 5 from 5pm to 6.30pm, at the Kuala Lumpur Convention Centre, KLCC Plenary Theatre.

The boys have been practising since March, not only at rehearsals with local musician Edwin Nathaniel but also at home.

Auditions were conducted to choose the youngsters who could grasp the basic rhythm patterns.

Because people with autism are very reliant on routines, helping the youngsters rehearse meant being very precise and detailed in the instructions. Nathaniel observes that the children now not only have their own parts, they also know their friends’ parts and sometimes remind their friends of missed cues.

As a bonus, the Aseana Percussion Band will also be on hand to ensure the audience has a stomping good time at the concert.

At the concert venue, there will also be an art exhibition by 15 autistic artists. It will feature about 60 pieces of art (paintings and clay).

The funds raised will go towards PR4A’s plan to set up centres in the Klang Valley, Ipoh, Penang and Malacca and to train parents in various forms of therapy.

Tickets for the Hand in Hand with the Stars concert are available from Ticketpro Malaysia / Ticket Hotline (03-7880 7999 / 03-7880 4992).

Monday 8 June 2009

Thank you Malay Mail for highlighting our SOS

Thank you Malay Mail for highlighting our SOS 
"I LOVE you" are the only three words that are missing in his life.


Simple words they may be, but the joy, contentment and happiness that emanate from this simple phrase is one that blogger Shiok Guy aka Yong Yek Ming yearns and longs to hear with all his heart from his eldest son, Wei Jie.
autism


Wei Jie, 9, is suffering from an acute form of autism. He is non-verbal, displays repetitive behaviour of self-injury and is socially-impaired.


Click here for detail...


Friday 29 May 2009

SOS! Autism Centre Closing Down - 14 June 2009

What is Autism? Kindly click here for google Information!

Both my sons are suffering from acute form of autism, and they have been going to this center for the past few months. This center was funded by a Kind Businessman via charity donation. Hence it has been offered as Free Service to those parents who cannot afford the full commercial service. I am one of those parent who need Early Intervention Program and cannot afford it.

The center was headed by a very experience teacher in autism management and intervention. He is a retiree and if he left this job I don't think he will be actively working for the good of autistic kids again. I want to secure his service and take over the operation of the center. I have the business experience and also autism management experience to turn this around.

We are not going to provide a free for all kind of services, but will be very affordable. We will have a trust fund setup to help those who cannot afford to pay for the service. Time is running out, 14 June 2009 is the deadline for the Current Center to cease operation. I would like to take this opportunity to thank the owner of the current center for his contribution in past years.

Why am I here asking for help? I have no other way to go and seeking the help from whoever I can get my hand on to. We need the following: -

1. Premise - prefer a corner lot house with some garden area where we can setup sand and water therapy area.

2. Musical - Since autistic kids are very artistic and musically inclined, I want to setup some musical class to explore their potential. Any good working Piano or Electronic piano are needed. Can Yamaha donate some? Anyone who know someone in Yamaha?

3. Art - Art supply for painting and others

4. Renovation - Can some good soul help to pay for the renovation and furnishing of the center?

5. Telecommunication - Telephone, Fax and Internet access

6. Funding - We need at least one year of funding before we can be self funded. I will work out the requirement once we have more people come into play and willing to help

7. Teaching material - I have plenty in my house becasue both my sons are autistic and I have invested over the years.

Anyone can help me to published all the above? I have 2 weeks to put thing together before they closed it down. 20 kids will be affected if the center is closed down without giving them an alternative to go.

Update


29 May 9:32pm : Immediately we need a place to move all the material to. A place where we can start to put all the thing together. Funding can be later since we need a place to continue teaching those kids after 14 June 2009.

For those who ask me about the account number, I will ask NST tomorrow to see if they can help as independent party. Using my account will be a BIG conflict of Interest.

If you want to help to donate cash, piano, or anything that we can use. Please send me an email at Shiokx@gmail.com with the subject line of "I love to help"

29 May 10:11pm: A few friend comment that my english is really suck and they cannot really understand what am I talking about. Since I am an engineer by training, let me put it in point form: -
  • The current Autism Center will cease operation on 14 June 2009 (CONFIRMED)
  • 20 kids including my two sons will have no center to go after 14 June 2009
  • We negotiate with the owner to take over the material and furnishing
  • We need to find a new place, a corner lot house is ideal because we need outdoor/garden to setup Sand and Water Play Therapy
  • We Have Not Setup a company just yet
  • The idea is to have a SDN BHD as Center. This will be run as normal business center but provide affordable rate of service. The main Objective is to survive by itself.
  • The SDN BHD Center will setup a trust fund to manage donation to help those needy.
  • Immediate we need a House, Renovation and Funding for at least 1-2 years for Teachers and Operating Cost!
30 May, 12:55am: I have decide to publish my personal account number in Maybank! First I just did a statement summary of my Bank Account as off 30 May 2009. 00:52:23. Please refer to the attached print out from MayBank. We can trace backward from today onward and I am not going to use this account for any other purpose other than the center (Please double click on the image for larger view)



I have also done some budget for the initiate fund required. We would need RM40K to last us until Dec 2009



The following is my Maybank Account detail: -

Account Name : Yong Yek Ming
Account Number : 164847018858

or Paypal




30 May, 17:31pm: I belief this is Zorro Account Number. If you feel more comfortable to donate to his account instead of my Maybank, please do so and the cause is the same.



Update 4 June, 2009: We have received pledge and cash donation, Casio Keyboard and personal help





Click the above image for full or larger view. Thank you very much for your support.


Regards
Yong Yek Ming aka Shiok Guy

+60 12 208 2818 


Brothers, Sisters and Friends who highlighted our SOS call (pls email me if you carry our SOS call): -



Tuesday 26 May 2009

The Picture Exchange Communication System (PECS)

Since my elder son is still non verbal at the age of 9, and we have decided to start PECS properly and correctly this time round.

I will need some help! Any member/reader who know of Video, Book and Material please leave the information at the comment section of this blog. You inputs are very much appreciated

Anyone who like to contribute all PECS related material, Book, Video and etc please email to me Shiokx@gmail.com. Your contribution will not just help my son, but all those within Malaysia who happen to want to use those Resources. Thank You!

Regards
Shiok Guy

Friday 22 May 2009

Autism insurance bill passed by New Jersey Assembly

Autism insurance bill passed by New Jersey Assembly 

Posted by cstetler May 21, 2009 16:05PM

Autism therapy should be covered by insurance companies, the New Jersey Assembly voted today.

The New Jersey Assembly today approved a bill that will require insurance companies to cover the cost of therapy for autism, which affects 1 in 94 children in New Jersey, making it the state with the nation's highest rate of autism.

The proposal requires health insurance companies to cover the cost of autism treatment deemed medically necessary, including speech and occupational therapy, with an annual cap of $36,000. It also mandates coverage for behavioral therapy, which includes exersizes like helping an autistic child learn to make a sandwich.

If the measure is approved by the State Budget Committee, New Jersey will become the tenth state to enact such a law.

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Thursday 21 May 2009

'Miracle drug' call Lupron

Autism drug Lupron: 'Miracle drug' called junk science

Powerful castration drug pushed for autistic children, but medical experts denounce unproven claims.

Desperate to help their autistic children, hundreds of parents nationwide are turning to an unproven and potentially damaging treatment: multiple high doses of a drug sometimes used to chemically castrate sex offenders.

The therapy is based on a theory, unsupported by mainstream medicine, that autism is caused by a harmful link between mercury and testosterone. Children with autism have too much of the hormone, according to the theory, and a drug called Lupron can fix that.

"Lupron is the miracle drug," Dr. Mark Geier of Maryland said after meeting with an autistic patient in suburban Chicago.

Geier and his son developed the "Lupron protocol" for autism and are marketing it across the country, opening clinics in states from Washington to New Jersey. In the Chicago area, the treatment is available through Dr. Mayer Eisenstein, a family practitioner in Rolling Meadows.

But experts say the idea that Lupron can work miracles for children with autism is not grounded in scientific evidence.

Four of the world's top pediatric endocrinologists told the Tribune that the Lupron protocol is baseless, supported only by junk science. More than two dozen prominent endocrinologists dismissed the treatment earlier this year in a paper published online by the journal Pediatrics.

Simon Baron-Cohen, a professor of developmental psychopathology at the University of Cambridge in England and director of the Autism Research Center in Cambridge, said it is irresponsible to treat autistic children with Lupron.

"The idea of using it with vulnerable children with autism, who do not have a life-threatening disease and pose no danger to anyone, without a careful trial to determine the unwanted side effects or indeed any benefits, fills me with horror," he said.

Experts in childhood hormones warn that Lupron can disrupt normal development, interfering with natural puberty and potentially putting children's heart and bones at risk. The treatment also means subjecting children to daily injections, including painful shots deep into muscle every other week.

This weekend, Eisenstein, Geier and his son, David, are scheduled to speak at the Autism One conference at the Westin O'Hare in Rosemont. The five-day conference, featuring a keynote speech by actress-turned-activist Jenny McCarthy, steps in where modern medicine has yet to succeed, offering answers for what causes autism and treatments with allegedly dramatic results.

All three men plan to talk about the link they see between autism and vaccines; the Geiers will also discuss hormones and autism.

Mark Geier and Eisenstein are physicians, but neither is board-certified in any specialty relevant to autism and the use of Lupron, including pediatrics, endocrinology, psychiatry and neurology. Geier is a geneticist; his son has a bachelor's degree in biology. Eisenstein, a family doctor who preaches a message of home birth, vitamins and vaccine safety, said he treated "virtually no" autistic children in the past.

Eisenstein said he met the Geiers last summer at the Health Freedom Expo in Chicago and that he began offering Lupron in his office because parents of autistic children were pleading with him for help.

Since his Autism Recovery Clinic opened in late January, Eisenstein said he has seen about 75 autistic children, with about 35 undergoing extensive lab testing. On May 11 he told the Tribune that four or five children were on Lupron, and 15 to 20 could start treatment within weeks.

The Geiers say they have probably treated 300 autistic children and a handful of adults with Lupron, and an additional 200 people are being tested.

In February, when the Geiers visited his office, Eisenstein was effusively enthusiastic about Lupron. "It is awesome, just awesome," he told doctors in his practice after the Geiers spoke about their therapy.

But three days after his May interview with the Tribune, Eisenstein called to say he was having second thoughts about the autism clinic, citing issues with insurance companies and less-than-spectacular results.

"It's highly unlikely that we're going to be part of the autism program much longer," Eisenstein said. "I'm not pleased enough with it. It's not where I want to put my energy."

Several parents whose children are on Lupron told the Tribune that it works, saying their children are better-behaved and show cognitive improvement. "It was an obvious, undeniable result," said Julie Duffield of Carpentersville, whose 11-year-old son has autism. "I wish you could see what he was like before."


Read the rest of the article here in Chicago Tribune

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