Showing posts with label Therapy. Show all posts
Showing posts with label Therapy. Show all posts

Tuesday, 14 August 2012

Child With Autism Insulted By Customer!

Come across this posting in FB, and I wish that Malaysian Public will always come to the rescue of the family if someone has been an asshole: -


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Sunday, 12 December 2010

My feeling after watching Ocean Heaven (海洋天堂)

Kind of Sad, Scare, Helpless and Hopeless. Any good backup plan before I die? I cannot live forever ...


http://en.wikipedia.org/wiki/Ocean_Heaven

Miracle please..

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Sunday, 7 March 2010

Parents Often Miss Subtle Autism Signs

Parents Often Miss Subtle Autism Signs

The symptoms of autism tend to emerge in children after six months of age, with a loss of social and communications skills that is more common and more subtle than previously thought, according to a new study that questions previous assumptions about the progression of the condition.  



At six months, children with autism spectrum disorder demonstrated behavior similar to other children, gazing at faces, sharing smiles, and vocalizing with similar frequency, researchers reported online in the Journal of the American Academy of Child and Adolescent Psychiatry. 

However, autistic children displayed fewer of these behaviors as as they got older, and from six months to 18 months the loss of social communication and skills typically became clear. 

To read more click here...
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Tuesday, 26 May 2009

The Picture Exchange Communication System (PECS)

Since my elder son is still non verbal at the age of 9, and we have decided to start PECS properly and correctly this time round.

I will need some help! Any member/reader who know of Video, Book and Material please leave the information at the comment section of this blog. You inputs are very much appreciated

Anyone who like to contribute all PECS related material, Book, Video and etc please email to me Shiokx@gmail.com. Your contribution will not just help my son, but all those within Malaysia who happen to want to use those Resources. Thank You!

Regards
Shiok Guy

Sunday, 17 May 2009

Erasing Autism

Erasing Autism

Scientists are closing in on the genes linked to autism. So why is Ari Ne'eman so worried?

Claudia Kalb
NEWSWEEK
From the magazine issue dated May 25, 2009

It's spring in Washington, and Ari Ne'e-man, with his navy suit and leather brief-case on wheels, is in between his usual flurry of meetings. Ne'eman is a master networker, a guy you'd think was born in a campaign office and bred in the halls of the Capitol. He's fluent in policy-speak and interacts seamlessly with high-level officials (he's just had lunch with the acting vice chair of the Equal Employment Opportunity Commission) and inquisitive reporters alike. He's formal but sociable and has a well-timed sense of humor. He also has a problem with velvet. I knew this about Ne'eman—he'd mentioned it when we first started talking more than a year ago—but now, in a D.C. coffee shop, he gets into the sensory details. His father used to drive a car that had fuzzy velvet-like cushioning, and it made Ne'eman crazy to sit in it. "I'd wince because I'd think about how it would feel to get that under your fingernails," he says. I think I see him shudder at the memory.

Ari Ne'eman is 21 years old and has Asperger syndrome, a high-functioning diag-nosis on the wide-ranging autism spectrum. Ne'eman's velvet aversion is triggered somewhere deep in his brain, a brain that he happens to relish. He doesn't want anybody to mess with or, God forbid, cure his Asperger's. It's who he is, who he's always been. It's why he's had ob-sessive interests since toddlerhood. At 2½, he saw a dinosaur skeleton at New York's American Museum of Natural History and announced, "That's a pterodactyl." From there he fixated on baseball, reciting players' names and stats ad nauseam, whether or not anyone was listening—a behavior experts call perseveration. Later it was Constitutional law. His friend Ben DeMarzo remembers driving with Ne'eman and two other classmates one high-school weekend. DeMarzo and the others wanted to listen to music—the Beatles were a favorite—but Ne'eman had other plans. "Ari made us listen to Supreme Court oral arguments. It was brutal," DeMarzo tells me. He was outnumbered—how'd he win? I ask. DeMarzo laughs. "Ari always wins," he says.

He certainly puts up a fight. Ne'eman is officially studying political science at the University of Maryland, Baltimore County, but he also runs the Autistic Self-Advocacy Network, a nonprofit he founded in 2006, the year after he graduated from high school. The task he has taken on is daunting and controversial: he wants to change the way the world views autism. Autism is not a medical mystery that needs solving, he argues. It's a disability, yes, but it's also a different way of being, and "neurodiversity" should be accepted by society. Autistic people (he prefers this wording to "people with autism," a term many parents use, because he considers the condition intrinsic to a person's makeup) must be accommodated in the classroom and workplace and helped to live independently as adults—and he is pushing to make this happen for everyone on the spectrum. They should also be listened to. "We're having a nation-al conversation about autism without the voices of people who should be at the center of that conversation," he says.

Ne'eman's network has local chapters in 15 states, and he works closely with organizations like the EEOC and the American Association of People With Disabilities. Neurodiversity activists see their mission as a fight for civil rights, and Ne'eman and others are willing to stir un-rest. "Ari's very straightforward," says Lee Grossman, head of the Autism Society of America, who supports many of Ne'eman's efforts. "He tells it like it is from his perspective." Ne'eman has taken on powerful organizations, specifically Autism Speaks, the largest science and advocacy group in the country, be-cause he believes they rely on fearful stereotypes and focus their research too heavily on what causes autism as opposed to improving quality of life for autistic people today. Last year he helped stop an edgy "ransom notes" ad campaign created by New York University's Child Study Center to raise awareness about autism. One said, "We have your son" and are "driving him into a life of complete isolation." It was signed "Asperger Syndrome." Ne'eman was appalled. "There's a misperception that autism is some thief in the night that takes a normal child and places an autistic child in its place," he says. "That's not true."

The autism spectrum itself, however, is a universe with multiple galaxies, including nonverbal toddlers who bite themselves and college grads who can't tell the differ-ence between sarcasm and seriousness. This complexity leads to passionate and conflicting viewpoints. Not everybody stands behind Ne'eman, and some adamantly op-pose his views. One major area of contention: scientific research, which includes the hunt for autism genes.

I knew Ne'eman had a surprising outlook on this and figured he'd have something to say about the recent news that scientists have found common gene variants that may account for up to 15 percent of all autism cases. This is big in a disorder that varies so enormously from one individual to the next. Environmental factors also play a role, but if scientists can test for specific genes—most of which have yet to be discovered—they may be able to intervene much sooner to help kids. One day they might even find a cure. This is exciting for parents who want to understand the roots of the disorder. Therapies—some helpful, some shams—vie for their attention and their pocketbooks, and they'd welcome better, more targeted treatments. But the new genetic advances concern Ne'eman. He doesn't believe autism can be, or should be, cured. His ultimate fear is this: a prenatal test for autism, leading to "eugenic elimination." If a test is developed one day, it will be used, he says. And that means people like him might cease to exist.

When I press Ne'eman on genetic research—doesn't it have some merit?—he says he doesn't oppose it outright, but he believes scientists must consider the ethical implications of their work far more carefully. Already couples are testing embryos for diseases like Huntington's, then choosing to implant only the healthy ones. And who can blame them? But autism isn't a fatal condition. Should people without the disorder be allowed to judge the quality of life of someone who has it? "That is a message that the world doesn't want us here," says Ne'eman, "and it devalues our lives."

The prospect of no more Ari Ne'emans—whether you agree with him or not—is haunting. Termination of fetuses with Down syndrome is routine today; given the fear that autism inspires in parents, why wouldn't it follow? And what would our world be like without autism? The vast differences among individuals on the spectrum make the notion even thornier: will parents start demanding to know whether their fetus will be low- or high-functioning? But it's also impossible to ignore the parents who say they'd do anything to free their children from isolation and pain. Some feel so hopeless so much of the time, they do wonder in private if their children would have been better off not born. And who can blame them?

Ne'eman battles a strange kind of image problem: his critics accuse him of not really being autistic. His mother, Rina, is particularly sensitive about this. "People who see Ari today have no idea where he's been," she says. As a young child, Ne'eman was verbally precocious but socially challenged. "I didn't understand the people around me, and they didn't understand me," he says. He was bullied and ostracized—back then he didn't look at people; he flapped his hands and paced incessantly (he still does both today); he brought newspapers to elementary school as leisure reading. "I think the word 'freak' may have come up," he says. He was, at one point, segregated from his peers in a special-ed school. That led to struggles with depression and anxiety so severe he would pick at his face until it bled. I asked Ne'eman how he manages all the professional mingling he does today. Small talk makes him uncomfortable, but he's learned to play along. Still, none of it is easy. "You come out of a meeting and you've put on a mask, which involves looking people in the eye, using certain mannerisms, certain phrases," he says. "Even if you learn to do it in a very seamless sort of way, you're still putting on an act. It's a very ex-hausting act."

He remembers being taught in social-skills training that when people are happy they smile with all their teeth, and when they're sad they wear exaggerated frowns. "I was always wondering, 'Why is everybody around me neither happy or sad? They don't have emotions'," he says. When you're autistic, social interaction can be like a foreign language: no matter how fluent you become, you're never a native speaker. Katie Miller, a fellow activist, jokes that "Ari is the only autistic we know whose special interest and talent lies in networking." But, she says, "it didn't come naturally. He's learned it the way every-body else learns algebra." Ne'eman has a way of taming the stress he feels: he wears a tie because it puts a soothing pressure on his neck. "It's a good way of calming my anxiety," he says.

One of Ne'eman's latest efforts is a new public-service announcement called "No Myths," which he helped create with the Dan Marino Foundation, a funder of autism research. In it, Ne'eman appears in a red sweater and tie along with others on the spectrum, including a man who speaks through a communication device. "Our futures have not been stolen," Ne'eman says. "Our lives are not tragedies." The message is clear: We stand before you. Don't make us go away.

URL: http://www.newsweek.com/id/197813

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Friday, 8 May 2009

Autism Diet

Published: May 8, 2009 (Article by nbc13.com )




There is no cure for autism, but there are lots of therapies and strategies that can improve the abilities and overall well-being of autistic children.

One strategy that works for some children is to change what they’re eating.

A new diet for an 8 year old autistic boy in georgia, named Justin, has improved his life.

“His language skyrocketed, his digestion completely improved. He was able to focus, I think focus a whole lot better in school and able to express himself,“ says his mother, Susan Delaine.

Justin’s diet is completely free of casin: no milk products or gluten.

“You can’t have any wheat, rye, barley or oats,“ says another mother, Jennifer Harris.

It’s not an easy diet to follow.

Many times it means shopping in stores that specialize in organic foods.

It means becoming a food detective.

“A lot of product labels will list white flour, but white flour is just bleached wheat flour, so you still can’t have that. There’s about seven different words for wheat. Triticale, durum, emer, fo, farina, semilima, so there’s things that confuse you when you’re first starting out,“ says Harris.

Justin’s mother began changing his diet about six years ago.

She few recipes, so created her own and then put them in a cookbook to help parents of other autistic children.

“Balancing the Bowl” is now updated and in its second edition.

And the entire Delaine family is now gluten-free.

And Justin’s happier and healthier.

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Monday, 4 May 2009

Early autism intervention makes dollars and sense

Early autism intervention makes dollars and sense
By William Frea with Daily Breeze

Posted: 05/02/2009 07:13:13 PM PDT

With one in 150 children today diagnosed with autism, the debate rages on over what is the best treatment for this condition, and - just as importantly - who will pay for it.

In the wake of Autism Awareness Month in April, we have an opportunity to take a realistic and probing look at the most effective means for treating this developmental condition, and where resources should be placed for this treatment.

Today, beleaguered states with budget deficits, such as California, are evaluating all service programs to find ways to cut costs. States need to take a close look at what approaches deliver the best outcomes and the best return on investment. The question is not how much do autism services cost, but how much is saved by treating autism early and effectively, and how much is lost if this early intervention does not occur.

The Autism Society of America has calculated that autism costs the United States more than $90billion each year. There's no question that treatment for autism is expensive. However, there is a significant difference between autism and other severe developmental disabilities. With autism, it's been shown that with targeted early intervention using scientifically validated methods, many children can gain the skills they need to move into a mainstream classroom.

With evidence-based early interventions such as Applied Behavior Analysis, or ABA, the most widely accepted method for treating autism, as many as half of these children would no longer be on the autism spectrum, and most would go on to successful futures as independent adults.

The costs of caring for a person with autism over his or her lifetime is estimated to be at least $3.2 million, according to a study from Professor Michael Ganz at the Harvard School of Public Health. Others have pegged the cost even higher, up to $4.7 million. With ABA therapy averaging $40,000 to $70,000 a year, and most children requiring only several years of therapy starting around age 2, early intervention with this approach clearly delivers an enormous return on investment by avoiding the multi-millions required for lifetime treatment, residential housing and care.

Not included in this cost-benefit estimate is the value that a functioning adult can contribute back to society, or the joy of parents and families who recover the child they thought lost behind the veil of autism. This human benefit is truly priceless.

Unfortunately, California recently opted not to require insurance providers to cover behavioral interventions such as ABA, even though this treatment has been the gold standard for treating autism for more than 30 years. Insurance companies have taken the position that it is education-based rather than a medical treatment.

Other states disagree. Nevada is close to passing legislation requiring insurance companies to fund ABA therapies. Nevada Assemblywoman Melissa Woodbury made a compelling argument citing research that demonstrated 47 percent of children with autism were able to lead independent lives after receiving at least 30 hours per week of intensive ABA early intervention. Nevada would join Arizona, Florida, Illinois, Indiana, Louisiana, Pennsylvania, South Carolina and Texas as states that require insurance providers to cover intensive autism treatments.

We all hope researchers will soon discover the cause of the autism epidemic and how to prevent it. In the meantime, we need to deal with both today's reality and tomorrow's prognosis, as these children move on through middle school, high school and transition to adulthood and careers. The best investment that we can make today is early intervention with scientifically validated ABA therapy.

As policy makers in California struggle with tough financial choices and argue over how much support to give to autism treatments, we urge them to consider not only the dollars and cents of autism, but the dollars and sense. Funding based on the outcomes of evidence-based therapies is the prudent decision for both the short-term and the long-term interests of children with autism, their families and our society as a whole.

Dr. William Frea is chief clinical officer and co-founder of Autism Spectrum Therapies, an agency providing autism services throughout Southern California. He has served on the California State Legislative Blue Ribbon Commission on Autism.

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Transfer Factor, What Say You?

Recently I have received a lot of email and phone call regarding Transfer Factor, which they claimed to have documented proof to help kids with autism. As a parent from third world or developing country, we have limited information on any method of tools to manage autism. We tend to have "No harm trying" kind of mentality. But that's cost BLOODY a lot of money to just try!

I am setting up this posting call "Transfer Factor, What say you?" and hope I can either cut and paste your experience without mentioning name and  detail. What I want to do is to gather information for the benefit of parents in Malaysia or third world countries especially in Asia.

Please either email me your experience or comment it online anonymously online. Your experience and insight to the above will greatly help.

Regards
Shiok Guy

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Tuesday, 21 April 2009

Depression

Depression is an emotional disorder.  The severity can range from a slight or temporary sorrow to long-term or complete and utter misery. Mental disorders are completely different from physical ones; and are often much more difficult to overcome.


Many different situations and events cause people to become distressed.  That, combined with the headaches of everyday life, can weigh heavily on individuals.

The main causes of depression are drug use, alcohol use, major stressful events, everyday activities if stressful, heredity, sickness and disease and using certain medications.

Continue reading....

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Friday, 17 April 2009

Sensory Slide Therapy

He is having a good time even when he is whining non-stop.











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Thursday, 16 April 2009

My Son's Experience with Ritalin

Monday, 23 March 2009. WJ first day on Ritalin, 5mg. This is a video documentary of his reaction in school. He took the Ritalin at 7am, school start at 730am. We were are worry about the side effect and also his reaction to the drug.

I hope this documentary will not discourage other parents to start taking the drug. This is only my personal account of my son's reaction.








Taken second dose of 5mg before ABA therapy on 23 March 2009




No appetite for breakfast on 25 March 2009




Self beating on 25 March 2009






ABA Therapy: Play Ball on 25 March 2009


ABA Therapy: Living Skill on 25 March 2009


School Trip to KLCC on 26 March 2009


I week later on 30 March 2009



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